It's about time for LYME to get flown
- Tanya
- Sep 29, 2017
- 4 min read
"My tolerance level has peaked..." A rap song that just shuffled in... Yes, well, my tolerance level has peaked. Yes siree. And "it's time for heads to get flown." Errr, maybe mine. The pressure in my head at times can be very scary. If I did not understand this disease as much as I do, I'd be very very afraid. So rest in these words, Lyme will be evicted for good, very soon. I created a website to share the complexity of Lyme disease. Actually the moment I started was on a whim. Once my brother got it, then my sister... all bets were off. I was still just testing for and suspecting it, but I could tell something was really wrong and that we needed BIG help. The disease is so complex... it takes research or a very expensive private doctor. I had essential oils at my fingertips and the protocols can be complicated or the information on how to treat fast-changing on what works best. So what did I do. I made it my job to make a website. I've had Lyme disease, not sure how long. I discovered it last April (thanks google and finding the term "air hunger" ... since I COULD NOT BREATHE). It took until the end of August to get a proper diagnosis to be able to verbalize that I actually have it; and then, finally then people may nod in agreement that I actually do have it. That said, agreement in diagnosis is barely the battle. The challenge then is the complexity of it, because there is no cure.
The docs will say, "Well, the CDC says you do not have Lyme and even if you did, I cannot treat you. Are you getting any exercise? Perhaps the mediation site HeadSpace may help?"
All to which I replied, Ok thank you, I understand, can you pull labs for cd57 fighter cells and c4a inflammatory response, and potential co-infections, and thyroid, iodine, and mineral levels … and I’ll be on my way, thank you.
… You take things into your own hands.
So folks... I have Lyme Disease and a couple co-infections Bartonella and Ehrlichia. (And maybe Babesia, though it did not show up.) I also have viral antibodies showing up for the Coxsackie virus (my son had that last summer). I found a tick on me last summer, after walking our very paved, low-grass neighborhood. It’s all pretty consuming.
Lyme can live in your body a long time and come out when your immune is compromised (just like chickenpox hides and becomes shingles). The longer you have Lyme and Co’s, they will get entrenched in your brain, bones, blood, organs. So what am doing... researching and self-treating, for the most part, so far. Insurance DOES NOT cover lyme disease and often gives long-term antibiotics. So, I'm treating with supplements, oils, spices, and herbs... in bulk, etc., diet, chiropractic visits, acupunture, muscle testing, ... the list goes on. Next up infrared sauna therapy.
Lyme may respond to antibiotics EARLY, late stages -- not so much or it must be done very carefully and pulsed with multiple ones! Some get much sicker on antibiotics, or the bugs become antibiotic resistant. Importantly 80% of your immunity lives in your gut, so once you fight the bugs this way you kill your good ones.
I am getting better, I see progress, though I have a long way to go. Sadly, I am seeing WAY too many who are sick. At first I started sharing my website in Lyme groups or to friends in private message that had mystery symptoms. So, in the spirit of awareness, love, courage, and a fighting spirit; here is my imperfect website that I share. Someone recently said, “cancer is bad, aids was pretty devastating… lyme is worse.” And certainly once you have a chronic illness you realize it's not very kind to go around knocking anything or anyone. Walk a mile in someones shoes, or across the room. I limped for a month but at the scariest of time I felt as though I may just die. That has happened a few times and continues to run through your brain. When you wake up and your arm is asleep and your left side feels heavy... you think, what will happen if I die, here alone with my young son. What will he do? I am not taking this sitting down. And I know many who have beaten cancer and lyme. I know there is hope. And sometimes awareness is as hopeful as anything, that you may minimize someone else from hurting. Every time I’ve tried to share this on my facebook to-date, the words just did not come out right and I just deleted my post. So here it is... my post I tried and then "deleted", yet again. The urgency comes with the next FB friends post, "my son cannot move his legs, the doctors do not know why". Or the one in FB group, "I feel pressure in my brain and do not feel like myself" (lyme can cause disassociation) or to the worst I've seen... "I cannot do this anymore and no longer want to live, even the thought of my kids is not bringing me from this thought". And then I see dozens of people come to the rescue reminding this is the lyme, not YOU, and to hold on. SO WHO is helping... you are.
To quote another song… “It's foreign on this side… there’s no place to hide, but I don’t think I’m scared.” (Nickle Creek)
I put every ounce of trust in God the Father. And my gloves are ON. And I look forward to helping anyone put their gloves on... heck, you might need to find them first. Where are my GLOVES?
https://tapplebella.wixsite.com/oils/lyme https://www.facebook.com/midnightmustardoils/ Someone mentioned they wanted to follow my blog. Just link to my FB and follow there and I'll be sure to post there when I blog. :)
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